Archive for the ‘music’ Category

what a trip.

Tuesday, April 27th, 2010

i’m still jetlagged, i think. but the scan yesterday knocked me out pretty good too.

there is so much to say about our trip out west. the music was amazing – my top five of the festival were dirty projectors, jonsi (of sigur ros), matt and kim, yo la tengo and the avett brothers, but fever ray, MGMT, jay-z, deerhunter, yeasayer, spoon, and atoms for peace (thom yorke and flea?!?) were also excellent. there were 80,000 people at coachella, crashing local cellular networks and personal neural networks alike: for example, this poor man.

after three days and long nights of music and mayhem, we managed to make it to joshua tree (yes, we listened to U2) and the antelope valley poppy reserve before fighting our way through the snowy, winding roads to yosemite.

yosemite gave us a cloudy striptease, revealing its majestic peaks and snow-covered meadows piece by piece. we were hoping to make it to the top of upper yosemite falls to spread a portion of my grandfather’s ashes, but the snow was so thick on the narrow trail that we stopped halfway up at columbia rock. the views weren’t quite as advertised – by the time we reached the rock, the snow was falling so thick that the valley floor was barely visible, much less the towering granite spires surrounding the valley. but we soldiered on along the valley floor trail, where i looked a coyote in the eyes and watched as the clouds floated in and around the high rock walls around us. i’m grateful we decided at the last minute to upgrade our tent cabin to one with insulation and heating. what a contrast, to go in 24 hours from 95 degrees to 25 degrees.

and now we are home, back in lovely brooklyn, and today is my least favorite day – the day between my scan and receiving the results. this is a big one. if the scan is clean, my doctors will declare me in remission. as i’ve said before, remission from my aggressive and widely metastasized disease is likely not the end of this – although it would obviously be wonderful if that were the case. i’ve spent the day so far worrying and thinking about “life after cancer.” i don’t think for me that there is a life after cancer – there is only a life with cancer.

and the new york times happens to be reflecting on just that topic. check out this powerful photo collage of some of the 12 million (!!!) american cancer survivors.

crisp?

Thursday, March 4th, 2010

“crisp.”

the oval of skin on my shoulder gets redder and redder each day. yesterday the radiologist said that by the end of treatment it would be “crisp.” that is not an adjective that i especially like to hear used to describe my skin. but again, i remind myself that this treatment may be the last for quite some time, so i suppose it’s worth putting up with it. i search my body regularly for odd moles (you remember the ABCDE of mole monitoring, right?) and lumps in the lymph system. it is not a search i relish. too many times i have experienced the terrible, frightening feeling that comes with discovering an anomaly. i have found most of my tumors well before they light up on a scan, and the finding comes with a sadness and frustration that i simply cannot properly express. it’s all just part of the roller coaster life of living with advanced cancer.

speaking of roller coasters: ballroom dancing is hard! foxtrot is easier; i must have learned it at some point at a wedding or some such. but the swing steps are a little tricky. i’m going to need some practice.

friends: don’t forget to come to jalopy theater tonight for anne bacon’s folk opera! it’s awesome.

here’s a preview of what’s in store tonight. there will not be a miniature steam train involved in the performance. as far as i know.

strictly ballroom

Wednesday, March 3rd, 2010

today is christmas day! hooray!

well not really of course. but it is the first day of a christmas present that i gave to my lovely wife (!!). i registered us for a month of social dance classes at the 92nd street y.

obviously she will dance circles around me. but she will have her own challenge: letting me lead after years of playing the six foot tall lead partner in her own classes. i think it will be something like this video below, except replace fran with me. but keep scott… just to have him around.

yes i will take my glasses off. it’s evidently an important part of the transformation from meek and shy to sexy and talented. i will no longer live my life in fear. by the end of our classes it will probably be something like this.

show business

Monday, March 1st, 2010

to my dear friends in the new york area: my old friend annie bacon is in town! we love anne and it is always nice to have her smiling face around. this thursday at 10 pm, she (and many of our friends) are performing an original folk opera at jalopy. it is an excellent place to see music, and is just a short walk from my house. i will be pressing through the growing fatigue of radiation treatment to attend, and thus you have no excuse for missing this one. if you would like to meet at sackett street and walk over with us, that would be just fine.

if you visit annie’s myspace, you can listen to the song “window moons,” which she generously wrote about visiting me and kathryn when we are old and gray. it is a very sweet and tender song. i was singing it in my head when we were married. “we’re looking forward to looking back.” lovely.

hold these hearts courageously

Friday, January 8th, 2010

song of the day for surgery: province by tv on the radio.

Suddenly, all your history’s ablaze
Try to breath, as the world desintegrates
Just like autumn leaves, we’re in for change
Holding tenderly to what remains
And all your memories, are as precious as gold
And all the honey, and the fire which you stole
Have you running through all your red-cheeked days
Shaking loose these souls, from their sacred hiding space

Hold your heart courageously
as we walk into this dark place
Stand, steadfast erect and see
that love is the province of the brave

Pushed under this expanse of bursting stars
Let this burning brightly illumintate the where we are
In this hollow that lovers’ voices occupy
Let it follow that we let it free, let it fly

Breaking open the walls of this cage
Intoxicated, oh so amazed
Much like falcons tumbling from the heights at play
Conjoined, talons engaged

Hold these hearts courageously
as we walk into this dark place
Stand, steadfast beside me and see
that love is the province of the brave

minnesota

Tuesday, December 1st, 2009

what an amazing trip home. a perfect distraction from the stress of the last few weeks.

where do i begin? how about with the food:

lentil soup with jalapeño cornbread, morel and sage ravioli, gumbo, mole; starting our days with strada, crepes with berries, fresh lox. we went out only once, to a fantastic experimental vietnamese restaurant in st. paul. rabbit dumplings anyone?

that doesn’t even cover thanksgiving, which included all the traditional fixings made awesomely delicious by my parents’ extraordinary cooking skills.

speaking of cooking, i was hoping to spend the evening catching up with friends and writing a nice long post tonight. but then i came home to a dead freezer. so i’ve spent my night buying a new fridge. which actually is pretty exciting.

beyond the meals: the coziness of home, walking the dog to the river, the watching of classic movies and amazing theater (since i’m in north carolina for christmas this year, we celebrated a little early), the drinks with friends (OMG i had a drink with sara jane olson! from the symbionese liberation army! for reals!!!).

but one tradition that has become one of my favorite holiday rituals is the singing party we host on the friday after thanksgiving. it’s such a rewarding experience year after year but this one was a particular highlight for me – in large part because i was in the midst of a horrible manic episode caused by a drug reaction last year and couldn’t enjoy it – but also because the quality of the music and balance of the night were so excellent. there was time to catch up with old friends, time for a glass or two of wine, time for songs, endless songs. hilarious songs. moving songs. classic songs. songs from musicals. songs from other musicals which i may or may not know every single word of, and which, evidently, must be performed while combing through the hair of your sibling with a fork (thanks hannah).

most importantly, the trip was a way for kathryn to finally get a chance to get to know the twin cities, minus a few key folks. and it was a chance to see my loving and beloved family (and the extended twin cities version) that continues to support me as the chemo sets in again.

i hate chemo. but i love music, and i love my family. and that’s enough.