Posts Tagged ‘annie bacon’

goin out west!

Wednesday, April 14th, 2010

tomorrow (at 6 am, ugh) kathryn and i fly west for the coachella music festival! we’ll also be making stops in joshua tree, yosemite and the bay. i could not be more thrilled!

the lineup this year is pretty stellar – we’re going to have to do some serious stage-hopping!

i’m nervous about being standing around out in the sun all day. but i’m prepared – not only am i totally stocked up on sunscreen, but i also have a note from my doctor (thanks team) explaining my condition and the medical necessity of a sunbrella, my late grandfather’s awesome go-go-gadget cane that converts into a seat, and my many medications which i have to keep on my person.

for those of you in the bay – we’ll be coming into town thursday the 22nd and leaving at dawn on saturday the 24th. we’re planning on being at beckett’s to see the lovely and talented ms. annie bacon and friends. we’ll be staying with annie at the tower on friday evening the 23rd so i hope you can come over for a visit.

when we return, i immediately have a PET/CT scan – this is a big one. i’ll get the results april 28th and will keep you all posted.

i’ll try and get an occasional mobile post but between those, i recommend spending some time perusing the sites of my many blogfriends. they present quite a slice of american life and make for pretty interesting reading!

love to you all! see you in california!

crisp?

Thursday, March 4th, 2010

“crisp.”

the oval of skin on my shoulder gets redder and redder each day. yesterday the radiologist said that by the end of treatment it would be “crisp.” that is not an adjective that i especially like to hear used to describe my skin. but again, i remind myself that this treatment may be the last for quite some time, so i suppose it’s worth putting up with it. i search my body regularly for odd moles (you remember the ABCDE of mole monitoring, right?) and lumps in the lymph system. it is not a search i relish. too many times i have experienced the terrible, frightening feeling that comes with discovering an anomaly. i have found most of my tumors well before they light up on a scan, and the finding comes with a sadness and frustration that i simply cannot properly express. it’s all just part of the roller coaster life of living with advanced cancer.

speaking of roller coasters: ballroom dancing is hard! foxtrot is easier; i must have learned it at some point at a wedding or some such. but the swing steps are a little tricky. i’m going to need some practice.

friends: don’t forget to come to jalopy theater tonight for anne bacon’s folk opera! it’s awesome.

here’s a preview of what’s in store tonight. there will not be a miniature steam train involved in the performance. as far as i know.

show business

Monday, March 1st, 2010

to my dear friends in the new york area: my old friend annie bacon is in town! we love anne and it is always nice to have her smiling face around. this thursday at 10 pm, she (and many of our friends) are performing an original folk opera at jalopy. it is an excellent place to see music, and is just a short walk from my house. i will be pressing through the growing fatigue of radiation treatment to attend, and thus you have no excuse for missing this one. if you would like to meet at sackett street and walk over with us, that would be just fine.

if you visit annie’s myspace, you can listen to the song “window moons,” which she generously wrote about visiting me and kathryn when we are old and gray. it is a very sweet and tender song. i was singing it in my head when we were married. “we’re looking forward to looking back.” lovely.